Lesley Newbold – Test Valley Walk

I wanted to share with you this wonderful and very touching  from Lesley about her Test Valley Walk

Jeff was diagnosed 11 years ago and things have slowly deteriorated. 

We began to feel isolated and found life challenging . In January, after chatting with Julia on line, we joined the Fareham branch.

We have felt welcomed from the start and find it very helpful to meet people in the same/similar situation as us.  The group has been amazing and we wanted to give something back .

When I read about Walk the Test Way , I knew this would be the challenge for me. I opted to complete the 25.5 mile walk and convinced my 2 friends and eldest daughter to join me. 

The day was kind to us weather wise, but towards the end, the walk proved very challenging, all 4 of us reliant on co codamol for pain relief!   

In total it took us 9.5 hours !   We walked through beautiful countryside and met amazing people. 

Jeff was at the finishing line waiting for us, and the magnitude of the whole thing bought us all to tears!  In total we raised £445

We had an amazing time, and will be looking for new challenges in the new year to raise further funds for the group. 

Lesley Newbold 

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Our October Newsletter

From our Lady Chairman:

This is but a short note as I am recuperating from my regular hospital procedure, and have lost yet another week of my life.

We have had such a successful fund-raising season that I must very sincerely thank everyone who has put in so much effort.  The sad thing is that so much work falls to so few volunteers.  You will read other comments about this below, but it is a constant problem that we really must address as quickly as possible.

The proposed holiday at The Grove Hotel in Bournemouth from 14th to 21st October is getting close, and I am currently putting everything in place.  There are still places available if you want to take part, £400 per person for a week, half-board, including transport to & from, & outings.

Please look at the list of outings available and consider taking part.  Everyone who participates returns with great praises, and says how good it is to be out with people who really under-stand the constraints of Parkinson’s.

Some of you may have seen in the news about a possible early diagnostic tool that may be trialled.  It involves the patient’s ability to draw, and is, therefore, totally non-intrusive.  I have asked our Research Department for further details, and am awaiting their reply.  Earlier intervention in the illness could possibly slow down the progre-ssion, which would be a really good development in treatment.

Best wishes to you all –                        Valerie


A two-edged critique:

This arrived from Keith Howell just after the e-mail version of the July news

-letter was despatched:

I have to take issue with your correspondent after reading the report on ‘Entertaining Mr. Sloane’ in issue 19 that contained the statement ‘shame on us’ for not taking up free tickets given by an organisation desperate to get an audience.  Only three days later, we had an excellent evening of music provided by the Milton Glee Club, a regular event in our programme for many years.  We were given a very varied programme of music by the choir and by some first class soloists.  The number of members attending was, as noted by the Chairman, disappointing.  ‘Shame on us! for not taking up theatre tickets…No….shame on us for not supporting our own event, held at a more pleasant venue where there was ample car parking, tickets were only half the price of the theatre tickets and there were free drinks in the interval!!

Actually, it should just be ‘shame on us’ for both.  If we can’t support events such as these, collections, and fayres, etc., the branch could fold, and many sufferers and their helpers would lose out.  Without your help one way or another, in the words of Private Frazer of Dad’s Army, we’re doomed!


Beaulieu River Cruise: (23 Aug. 2017)

Although a very popular cruise, we were fortunate to claim a long row of seats so we could all sit together on the upper deck at the bow of the ship with clear views of the Solent and the picturesque River Beaulieu.  An excellent narrator informed us of relevant places of interest during the cruise, so, even though most of us were local to the area, we all agreed we learned a great deal of general and historical interest.  We returned via the coast of the Isle of Wight (now we all know where Osborne House is!), had a close-up view of one the Palmerston’s Follies, Spitbank Fort, and ended the cruise with a grand tour of Portsmouth Harbour, with much interest shown, and lots of photographs taken, of the gigantic, new Royal Navy aircraft carrier, HMS ‘Queen Elizabeth’.


Watercress Line Trip: (7th Sep. 2017)

A group of our members were lucky enough to be able to sit back and enjoy the wonderful views across the rolling Hampshire countryside in reserved accommodation in a first class carriage on the restored steam train on the Watercress Line.  This year, we decided to take the train from Alton to Alresford where tables were booked for us for lunch in the station buffet.  Afterwards, whilst some of our group took a leisurely stroll along the pretty High Street, others took the opportunity to have a rest and light refreshments in the lovely Bell Inn.

We enjoyed sharing our stories of the day on the return train journey from Alton and Jim, our driver, was waiting at Alresford to drive us back to Stubbington. Another enjoyable day out, in the sunshine this time!  Many thanks to one of our members, Mike, a volunteer on the Watercress Line, for arranging the reservations.

Pauline H. was very happy as she found a shop with the magic words “Gin Tasting”, and bought a bottle of the local brew.


For details about booking trips, please contact Margaret Bulleyment, via margaretbulleyment@gmail.com, or on 07975 874 770.

There is an important update regarding booking trips next year:  As the result of problems collecting funds for ‘reserved seats’, it has been decided that in future, all tickets are to be paid for when they are being booked.

Stubbington Fayre: (28 Aug 2017)

It was a beautiful, hot day, and we were to be glad of the gazebo!  The fayre went off pretty well, starting with the erection of the gazebo at about 08:30, and ready for the public at about 10:00, but that hadn’t stopped early birds coming in way before then to snap up the best deals!


A call has come from the committee for suggestions on fund-raising, and on what we could include on our stalls at fêtes and fayres to replace the un-sellable items we have accrued.

To clear the decks for the future, most of this will have to be donated to other charities (that also help Parkinson’s sufferers) for them to sell – or dispose of – as they see fit.

Most of the ‘staff’ worked the full day setting up the gazebos and the stalls, selling the items, and clearing the site afterwards – from about 8:00am to 4:30pm.  They were fuelled only by a couple of cups of tea or coffee, and a donut, and virtually no relaxation time.  This is not how we should be treating our volunteers.

Next Year, we will be looking for a new crew of volunteers for these occasions.  Advice will be readily available from previous organisers who have given years of loyal service, but are now definitely stepping down.  A rota system will be put in place, which will require more people, but only doing 90-minute slots each.


Carers’ Group: (by Carol Howell)
This group was set up at the request of a member, but does not seem to have “taken off” as well as we would have wished.  The idea was that a low-key sit-and-chat group of carers could share experiences and possibly find helpful solutions to difficulties – nothing to do with high-brow information on Parky – merely hands-on, helpful hints discovered through experience, not  from tuition.  No leading of discussions, just leisurely chatting.


Care Navigators: (by David Grimsdale)

I talked to some of you about Care Navigators.  This is an initiative that aims to support patients to maintain independence, and avoid unnecessary hospital admissions as part of the ’Putting Patients First’ model of care. A Care Navigator is attached to a GP practice, and is there to provide patients – and their family – with help, advice, and support when it is needed.  They can sign-post the services that will help maintain the patients independence and well-being.

There may not be a Care Navigator in each GP practice due to funding constraints.

Care Navigator’s rôle:

  • To work with patients who have a high ‘risk score’, and those with a risk of developing a high ‘risk score’ on the risk register in line with ‘Putting Patients First’.
  • To work closely with GPs in identifying and supporting patients to reduce the number of unnecessary hospital admissions.
  • To ensure that patients access services available in the community – both free, and where charges apply – based on the Navigator’s detailed knowledge of the relevant access arrangements, eligibility criteria, and service content.
  • To work with people with a range of needs, dealing with issues ranging from social isolation and keeping people engaged in their community, to preventing unnecessary admission to hospital or care home.
  • To assist people to access an assessment for Adult Social Care where appropriate.
  • To identify unpaid carers, and enable access to local support services.
  • To support basic information on what benefits the person may be eligible for, and to refer onwards for more in-depth advice where required.

Scam warning – ‘Contact Me’ message (from David Grimsdale)

You all have forms on your websites, and you usually get legitimate enquiries on these forms.  Do, however, check the contents in a message, and if the only way you can contact someone is via a premium rate (09xx) number, then don’t bother calling.  If the content is virtually non-existent, as in this one below, it is encouraging you to call a premium rate number.  In this particular case, I checked the number through a web search.  This individual is sending messages to websites through contact forms.  So if 10 people call back, then that is £1+ they have made, depending on how long they keep you on the phone.  You would not know what their premium rate is prior to phoning them.

If you are not sure, type the following into a Google Search form:  ‘who called me 08712771062’ (Obviously substitute this number with the one you wish to check.)  In this particular case, it took me to this page: http://who-called.co.uk/Number/08712771062 if you read the reported cases there, you can see the depth of the scam and other people’s comments.


From our Fête and Fayre teams..

Our thanks to all those who donated prizes for the tombola or for the bottle stall.  These have been very successful, and seem to raise most of the income.  Due to poor response on other stalls, it has been suggested that we cease selling bric-a-brac, toiletries & make-up items, records & CDs, videos & DVDs, books, and jigsaws.  We will need ideas on what to replace these items with – this is where we come back to the members – when we need good ideas!

 Raffles:  For the regular raffles for which members have been very kind with their donations, can we respectfully ask that you continue with the biscuits, beers, sweets, cans of foodstuff, etc., which all seem to go down very well, but toiletries seem unwelcome.

For special occasions, such as the Christmas raffle, etc., bottles of alcohol are still very welcome.  A bottle of Chateau Lafite Rothschild ’69 (that’s 1869) would go down very well, too, but I am suspicious that the 1787 might be a bit ‘off’ by now, and only fit for making jugged hare!


Cabaret Evening for Parkinson’s UK (from Ruth Brady, Parkinson’s HQ)

The Rotary Club of Highcliffe have chosen Parkinson’s UK as their charity of the year, and are putting on a Cabaret evening for us… see the following notice.

The Rotary Club of Highcliffe presents a Charity Cabaret Evening at The Lord Bute Hotel, 181-185 Lymington Road, Highcliffe, BH23 4JS on Friday, 27th October 2017, 6:30pm for 7:00pm..  Lea Martin sings songs from the West End & Broadway.  There is a three-course meal, a Raffle, Entertainment, and a Cash Bar.  Tickets are £45:00 per person, and are available by e-mail from Dave Foot (daveg.foot@btinternet.com).  All proceeds to Parkinson’s UK.

If anyone would like to book tickets, please email the address the on the flyer, and copy Ruth Brady in. (rbrady@parkinsons.org.ok)  It would be great to see members of the Fareham group there.  Valerie told me that some of these proceeds would be transferred to the south’s branches.


Very kind donation from ASDA:

The high spot of the L&P on Monday, 18th September, was a cheque presenta-tion of £500 from Asda Supermarket, Fareham. Asda Community Champion, Sharon Noble, and Asda customers nominated us as a worthy cause via their green discs.  Our sincere thanks go to them.  Below is a picture of Sharon passing a cheque to Valerie and Ann.


Fundraising

Our most recent collection (at Makro, Segensworth) on 16th & 17th September raised a useful £370-12p.  and to Tesco on 8th October raised  £218.37.Our thanks to all those who put themselves out to help with the collection.


CHRISTMAS CARDS: if you would like to purchase some Parkinson’s Christmas Cards, please look on our website www.parkinsons-fareham.org.uk for details, and how to order them.


‘ICE’ cards:  We are looking at creating ‘In Case of Emergency’ (ICE) cards for members to carry with them.  The idea is that if you become unwell or injured, this card will give important information about you and your health & medication to the police or medical personnel attending you.

The idea is to use a folded card that is normally kept inside its own plastic wallet.  The front outside surface of the card will have your name, address, and telephone number, and the rear would have your ICE contact, such as a son or daughter, but not your spouse or ‘main’ contact as they could be already with you, and perhaps caught up in a common calamity.  The inside surfaces would have any medical details you wanted to specify, such as Parkinson’s, dementia, anything you think somebody treating you could need to know, and any important medications and doses for these ailments.

The cards are primarily for when you attend Parkinson’s occasions, but would also be worth-while keeping with you at all times, just in case.  PLEASE LET US KNOW WHAT YOU THINK OF THIS IDEA

 

 

 


Some Statistics for you  (as of September 2017)

PUK members 205  
PUK potential members 51 No PUK Number yet
Other “members” 62 Carers, Volunteers, etc.

TOTAL

318  

During the last few months, we have welcomed as new members:

Ian and Pat Absolom
Margaret and Matthew Blair
Christine Catcheside
Pat and Roy Crooks
Ben and Jean Gosling

Welcome, one and all!

We have said ‘Goodbye’ to those who have left our group:

And, sadly, we have also had to say ‘Farewell’ to those who have passed on: Bob Calvert

Martin Hawkins
Michael Jowett
Don Tremayne

Our thoughts go out to their family and their friends.


DON’T FORGET that you are welcome to receive a Reiki treatment – free of charge – from Dawn and/or Ted, both of whom are qualified practitioners, so do give it a try.  Please speak with Peggy to book a treatment.


Christmas Party note from Carol:

The evening party is being reinstated, and will be held on Friday, 8th December, as usual at St Faith’s Church.  Doors will open at 6:00pm, for sitting at 6:30.  Homeward-bound coaches are due to depart at 9:30.

Because of the financial situation of the Branch, it is not sensible to subsidise this event to the same level as in past years, but a full hot meal served at your table, with entertainment, and a very happy evening for £15 a head remains excellent value.  Tickets will be available for sale from 2nd October, so, as the saying goes,  book early to avoid disappointment!  Please contact Carol Howell to get your form to make your meal choice, either directly at one of our meetings, or by e-mail (chowell75@btinternet.com).  Full commitment will only come into force when payment is made and ticket received.


Spartie Tubes

We have ‘handed out’ numerous tubes of Smarties at the T&C and L&P meetings,but have only had one filled with 20-pence pieces and returned to our Treasurer, who bought and donated them to help raise funds.


A security issue: (from David Lewry)

If it is some time since your signature was registered with your bank, and it has changed significantly since then, make arrangements to go to your bank and update your signature they keep on file.  Remember that a signature is required to be legible as your name.

Incidentally, have you ever tried reading a lawyer’s signature?  

Also, be careful if you are considering creating a power of attorney for somebody to operate your finances on your behalf.  Too many people have come to financial grief taking this route.  If you need this type of facility, consider having dual signatories, with both to sign.


DID YOU REALISE that it costs the Branch about £1.82 to produce and send out each copy of the newsletter.

If you can’t receive or print this, do you have a neighbour, or a family member who is able and willing to receive your copy by e-mail, and print it for you?  If so, please inform Ann & Ron Yorke on 01329 286 441, or by e-mail to ronyorke@aol.com

 

 

 

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Advice on Internet fraud and Password protection

Keep your passwords protected

The internet is becoming more and more vital in everyday life, and whether you like it or not, it’s becoming almost unavoidable not to have online accounts for banking, shopping and everyday admin. In fact, recent figures show that 77% of adults in the UK now shop online and 63% use internet banking.

As online accounts increase, it’s estimated that the average internet user now has 26 passwords to remember making it increasingly difficult to remember them all. It is important however, to ensure that you are not consistently using the same passwords, and that you make your passwords difficult to hack.

Top tips to secure your password

To help you minimise the potential risk of hackers here are some  useful tips to make your password as safe as possible:

  1. Use different passwords for all online accounts you enroll with. This way, should one of your accounts be compromised, none of your other accounts will be
  2. Consider using passphrases rather than passwords as they are less likely to be broken by brute force. A passphrase, for example, would be three random words with four or more letters i.e. “H0rseRainb0wPaul”

What are the 10 most common passwords?

Using numbers and symbols in your passwords can help increase their strength, but you still need to remember that using generic sequences can be just as easy to hack.

You might be surprised to see the simplicity of the top 10 most common passwords:

  1. 123456
  2. 123456789
  3. qwerty
  4. 12345678
  5. 111111
  6. 1234567890
  7. 1234567
  8. password
  9. 123123
  10. 987654321

Although these passwords will be easy for the account holder to remember and therefore reduce the likelihood of having to be regularly reset, they aren’t secure.

Security tips to protect you from internet fraud:

  • Never access a link that has been provided in an email and enter personal details
  • Always ensure there is a padlock displayed in the bottom right hand corner of the page, this indicates a secure connection

 Keep your PC secure

  • Use up to date security software and a personal firewall and if your computer uses the Microsoft Windows operating system, keep it updated from the Microsoft website
  • Be extra careful if using Internet cafes, chat rooms and social networking sites or any PC which is not your own and over which you have no control (fraudsters often use them to try and access personal information)
  • Stay with the computer: When you are browsing through any internet browser do not keep the computer unattended for any period of time
  • Clear history and temporary files: Internet Explorer and other browsers save pages that you’ve visited in the History folder and in Temporary Internet collection. Your password is also saved if that system is activated on your computer so do the following before you start browsing:
    1. For Internet Explorer : Go to Tools / Internet Options
    2. For Firefox : Go to Tools / Options / Privacy Tab
  • Click the Content tab then click AutoComplete. If the checkboxes for passwords are selected, deselect them. Click OK twice

Check your statement

Ensure you check your current statement at regular intervals. If you notice anything irregular contact your bank/building society immediately

Other things to remember

Always remember your password and other security information and destroy the notification letters immediately

Always take reasonable steps to ensure your PINS and passwords are kept secret at all times

 

 

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Parkinsons UK AGM

 
 
 
An invitation from Mark Goodridge and Mary Whyham, Chair and Vice-Chair of
Parkinson’s UK

Parkinson’s UK – 2017 Annual Members’ Meeting
We are writing to give you notice, as a member of Parkinson’s UK, of our Annual General Meeting (AGM) for 2017. The formal AGM takes place as part of a broader meeting for members where we will be talking about our activities, our ambitious plans and the part you play. It has been another very eventful year for the charity and we have lots of achievements to share with you. There will also be a “members’ marketplace”, where staff and volunteers will be available to provide information, answer questions and get your feedback on our work.

The meeting takes place at 11.00am on Saturday 14 October 2017 at Etc Venues, One Drummond Gate, Pimlico, London SW1V 2QQ, the formal AGM starting at 2pm. Some of you may remember this venue from previous AGMs. Please do join us if you can.

Members in England, Scotland and Wales are also encouraged to vote in the Trustee elections. Even if you are unable to join us, please use your vote, you can vote by proxy.

The Annual General Meeting
The formal notice detailing the business to be discussed can be accessed using this link.
You will see that this includes the standard items relating to the annual accounts and appointment of auditors and that we are also proposing to change our articles of association. The results of the trustee elections will also be announced at the AGM.

About the Trustee elections
This year there were five Trustee vacancies: one in each of Scotland, Wales and Northern Ireland and two in England. Members were invited to stand in the Spring issue of The Parkinson. There are candidates standing in all nations except Northern Ireland.  

Trustees have significant and wide-ranging responsibilities. The Board of Trustees is the governing body of Parkinson’s UK and is ultimately accountable for everything the charity does and how it does it. The Board consists of Trustees who are elected by the membership as well as Trustees who are appointed following a recommendation from the Nominations and Remuneration Committee. Standing as and voting for elected Trustees is only open to charity members, so please do use your vote.

  In the meantime, we’ll be saying goodbye to Dr Hilary Ackland and Dr Doug MacMahon. Both will be standing down at the AGM. Many of you will know Doug and his tireless work in connecting the charity to clinical networks. Hilary has also played a significant role, most recently with our staff, leading research into Trustee recruitment. Our thanks go to both for their work with and on behalf of people with Parkinson’s. Further details about all our Trustees can be found at: parkinsons.org.uk/trustees.

Articles of Association
The Board recommends that we make changes to our articles of association and that we do this by adopting a new version. The decision to propose these changes results from the need to address issues that have arisen in the context of Trustee elections and terms of office, and the desire of the Board to increase the membership of the charity. We are taking the opportunity at the same time to update or clarify other provisions.

The principal changes and the reasons for them are described in the Schedule attached to the notice of meeting.

A personal note from Mary Whyham, Vice-Chair of Parkinson’s UK
I was elected as a Trustee in September 2015 and became Vice-Chair in December 2015. I am also the Chair of Blackpool, Fylde and Wyre branch. My husband has had Parkinson’s for 17 years.

You will see that one of the proposed changes is to enable the Trustees to extend the term of a trustee, subject always to a maximum of ten years. If the revised articles of association are adopted, the Trustees propose to exercise this power to enable Mark Goodridge, our current Chair, to serve as such for two more years. He has been Chair of Parkinson’s UK since December 2015, but under our current articles would cease to be a Trustee at the end of this year’s AGM. It is the unanimous view of all the other Trustees that it is in the best interests of the charity for Mark to continue as Chair for a further two years, providing strong leadership for the Board and continuity and stability at an important time. This proposed extension will still mean that Mark will not exceed the maximum of ten years on the Board. I ask you all to support the changes to the articles which will enable us to do this.

Circulation of AGM papers
Members can also access the AGM papers online at parkinsons.org.uk/agm. Here you can see and download the draft minutes of the 2016 AGM, the Trustees’ report and financial statements for 2016 and the Nominations and Remuneration committee report. The resolution to change our articles, and the explanation and draft articles are also available here. The papers are available from today right up to the date of the AGM. 

If you would prefer to receive printed copies, we will arrange for these to be sent to you free of charge. Just call 0845 121 2354, email resources@parkinsons.org.uk or write to Parkinson’s UK, PO Box 485, Grays, Essex RM17 9HY and quote the relevant reference codes:

PKMINS16   Draft minutes of the 2016 AGM
PKAR16 Trustees’ report and financial statements 2016
PKNOMS1 Nominations and Remuneration Committee report 2016
PKART17  Draft revised articles of association
PKARTCOMP17 Comparison of current articles and proposed revisions
PKAGM17  Complete pack (of all documents)

Please note that printed copies will only be sent if you ask for them as this does mean considerable savings for the charity.

We look forward to seeing you…
If you would like to attend the AGM you can reserve your place through our website at parkinsons.org.uk/agm or by calling Tyler Events on 01509 631 530 by Friday 6 October 2017. You’ll be asked for your charity membership number as part of the booking process so please have this to hand.  Please note that we can’t cover travel costs for attendance at the AGM.
 
Refreshments and a light lunch will be provided.

If you’re unable to attend…
We’d still very much like you to be part of our AGM. You can submit your questions and comments for the AGM via our website at parkinsons.org.uk/agm or to me at chair@parkinsons.org.uk. Alternatively, you can write to Mark Goodridge, c/o Roma Grant, Company Secretary, 215 Vauxhall Bridge Road, London SW1V 1EJ and we will reply as soon as possible.

Parkinson’s 2017 – Your life, your services survey
In 2016 we asked you to complete the Your life, your services survey to help us build a picture of the state of Parkinson’s health and social care services and to better understand your individual needs.

We’d really appreciate it if you could take the time to complete this year’s survey. This will allow us to compare results and target areas where we know improvements are needed. Your answers really will make all the difference.To complete the survey, please visit parkinsons.org.uk/yourlifeyourservicessurvey .

The Trustees always look forward to this opportunity to share with members the work we are doing with you and with people with Parkinson’s. We do hope you can attend.

Best wishes,

         
Mark Goodridge                           Mary Whyham
Chair of the Board of Trustees   Vice-Chair of the Board of Trustees

 

 

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