From our Lady Chairman:
This is but a short note as I am recuperating from my regular hospital procedure, and have lost yet another week of my life.
We have had such a successful fund-raising season that I must very sincerely thank everyone who has put in so much effort. The sad thing is that so much work falls to so few volunteers. You will read other comments about this below, but it is a constant problem that we really must address as quickly as possible.
The proposed holiday at The Grove Hotel in Bournemouth from 14th to 21st October is getting close, and I am currently putting everything in place. There are still places available if you want to take part, £400 per person for a week, half-board, including transport to & from, & outings.
Please look at the list of outings available and consider taking part. Everyone who participates returns with great praises, and says how good it is to be out with people who really under-stand the constraints of Parkinson’s.
Some of you may have seen in the news about a possible early diagnostic tool that may be trialled. It involves the patient’s ability to draw, and is, therefore, totally non-intrusive. I have asked our Research Department for further details, and am awaiting their reply. Earlier intervention in the illness could possibly slow down the progre-ssion, which would be a really good development in treatment.
Best wishes to you all – Valerie
A two-edged critique:
This arrived from Keith Howell just after the e-mail version of the July news
-letter was despatched:
I have to take issue with your correspondent after reading the report on ‘Entertaining Mr. Sloane’ in issue 19 that contained the statement ‘shame on us’ for not taking up free tickets given by an organisation desperate to get an audience. Only three days later, we had an excellent evening of music provided by the Milton Glee Club, a regular event in our programme for many years. We were given a very varied programme of music by the choir and by some first class soloists. The number of members attending was, as noted by the Chairman, disappointing. ‘Shame on us! for not taking up theatre tickets…No….shame on us for not supporting our own event, held at a more pleasant venue where there was ample car parking, tickets were only half the price of the theatre tickets and there were free drinks in the interval!!
Actually, it should just be ‘shame on us’ for both. If we can’t support events such as these, collections, and fayres, etc., the branch could fold, and many sufferers and their helpers would lose out. Without your help one way or another, in the words of Private Frazer of Dad’s Army, we’re doomed!
Beaulieu River Cruise: (23 Aug. 2017)
Although a very popular cruise, we were fortunate to claim a long row of seats so we could all sit together on the upper deck at the bow of the ship with clear views of the Solent and the picturesque River Beaulieu. An excellent narrator informed us of relevant places of interest during the cruise, so, even though most of us were local to the area, we all agreed we learned a great deal of general and historical interest. We returned via the coast of the Isle of Wight (now we all know where Osborne House is!), had a close-up view of one the Palmerston’s Follies, Spitbank Fort, and ended the cruise with a grand tour of Portsmouth Harbour, with much interest shown, and lots of photographs taken, of the gigantic, new Royal Navy aircraft carrier, HMS ‘Queen Elizabeth’.
Watercress Line Trip: (7th Sep. 2017)
A group of our members were lucky enough to be able to sit back and enjoy the wonderful views across the rolling Hampshire countryside in reserved accommodation in a first class carriage on the restored steam train on the Watercress Line. This year, we decided to take the train from Alton to Alresford where tables were booked for us for lunch in the station buffet. Afterwards, whilst some of our group took a leisurely stroll along the pretty High Street, others took the opportunity to have a rest and light refreshments in the lovely Bell Inn.
We enjoyed sharing our stories of the day on the return train journey from Alton and Jim, our driver, was waiting at Alresford to drive us back to Stubbington. Another enjoyable day out, in the sunshine this time! Many thanks to one of our members, Mike, a volunteer on the Watercress Line, for arranging the reservations.
Pauline H. was very happy as she found a shop with the magic words “Gin Tasting”, and bought a bottle of the local brew.
For details about booking trips, please contact Margaret Bulleyment, via firstname.lastname@example.org, or on 07975 874 770.
There is an important update regarding booking trips next year: As the result of problems collecting funds for ‘reserved seats’, it has been decided that in future, all tickets are to be paid for when they are being booked.
Stubbington Fayre: (28 Aug 2017)
It was a beautiful, hot day, and we were to be glad of the gazebo! The fayre went off pretty well, starting with the erection of the gazebo at about 08:30, and ready for the public at about 10:00, but that hadn’t stopped early birds coming in way before then to snap up the best deals!
A call has come from the committee for suggestions on fund-raising, and on what we could include on our stalls at fêtes and fayres to replace the un-sellable items we have accrued.
To clear the decks for the future, most of this will have to be donated to other charities (that also help Parkinson’s sufferers) for them to sell – or dispose of – as they see fit.
Most of the ‘staff’ worked the full day setting up the gazebos and the stalls, selling the items, and clearing the site afterwards – from about 8:00am to 4:30pm. They were fuelled only by a couple of cups of tea or coffee, and a donut, and virtually no relaxation time. This is not how we should be treating our volunteers.
Next Year, we will be looking for a new crew of volunteers for these occasions. Advice will be readily available from previous organisers who have given years of loyal service, but are now definitely stepping down. A rota system will be put in place, which will require more people, but only doing 90-minute slots each.
Carers’ Group: (by Carol Howell)
This group was set up at the request of a member, but does not seem to have “taken off” as well as we would have wished. The idea was that a low-key sit-and-chat group of carers could share experiences and possibly find helpful solutions to difficulties – nothing to do with high-brow information on Parky – merely hands-on, helpful hints discovered through experience, not from tuition. No leading of discussions, just leisurely chatting.
Care Navigators: (by David Grimsdale)
I talked to some of you about Care Navigators. This is an initiative that aims to support patients to maintain independence, and avoid unnecessary hospital admissions as part of the ’Putting Patients First’ model of care. A Care Navigator is attached to a GP practice, and is there to provide patients – and their family – with help, advice, and support when it is needed. They can sign-post the services that will help maintain the patients independence and well-being.
There may not be a Care Navigator in each GP practice due to funding constraints.
Care Navigator’s rôle:
- To work with patients who have a high ‘risk score’, and those with a risk of developing a high ‘risk score’ on the risk register in line with ‘Putting Patients First’.
- To work closely with GPs in identifying and supporting patients to reduce the number of unnecessary hospital admissions.
- To ensure that patients access services available in the community – both free, and where charges apply – based on the Navigator’s detailed knowledge of the relevant access arrangements, eligibility criteria, and service content.
- To work with people with a range of needs, dealing with issues ranging from social isolation and keeping people engaged in their community, to preventing unnecessary admission to hospital or care home.
- To assist people to access an assessment for Adult Social Care where appropriate.
- To identify unpaid carers, and enable access to local support services.
- To support basic information on what benefits the person may be eligible for, and to refer onwards for more in-depth advice where required.
Scam warning – ‘Contact Me’ message (from David Grimsdale)
You all have forms on your websites, and you usually get legitimate enquiries on these forms. Do, however, check the contents in a message, and if the only way you can contact someone is via a premium rate (09xx) number, then don’t bother calling. If the content is virtually non-existent, as in this one below, it is encouraging you to call a premium rate number. In this particular case, I checked the number through a web search. This individual is sending messages to websites through contact forms. So if 10 people call back, then that is £1+ they have made, depending on how long they keep you on the phone. You would not know what their premium rate is prior to phoning them.
If you are not sure, type the following into a Google Search form: ‘who called me 08712771062’ (Obviously substitute this number with the one you wish to check.) In this particular case, it took me to this page: http://who-called.co.uk/Number/08712771062 if you read the reported cases there, you can see the depth of the scam and other people’s comments.
From our Fête and Fayre teams..
Our thanks to all those who donated prizes for the tombola or for the bottle stall. These have been very successful, and seem to raise most of the income. Due to poor response on other stalls, it has been suggested that we cease selling bric-a-brac, toiletries & make-up items, records & CDs, videos & DVDs, books, and jigsaws. We will need ideas on what to replace these items with – this is where we come back to the members – when we need good ideas!
Raffles: For the regular raffles for which members have been very kind with their donations, can we respectfully ask that you continue with the biscuits, beers, sweets, cans of foodstuff, etc., which all seem to go down very well, but toiletries seem unwelcome.
For special occasions, such as the Christmas raffle, etc., bottles of alcohol are still very welcome. A bottle of Chateau Lafite Rothschild ’69 (that’s 1869) would go down very well, too, but I am suspicious that the 1787 might be a bit ‘off’ by now, and only fit for making jugged hare!
Cabaret Evening for Parkinson’s UK (from Ruth Brady, Parkinson’s HQ)
The Rotary Club of Highcliffe have chosen Parkinson’s UK as their charity of the year, and are putting on a Cabaret evening for us… see the following notice.
The Rotary Club of Highcliffe presents a Charity Cabaret Evening at The Lord Bute Hotel, 181-185 Lymington Road, Highcliffe, BH23 4JS on Friday, 27th October 2017, 6:30pm for 7:00pm.. Lea Martin sings songs from the West End & Broadway. There is a three-course meal, a Raffle, Entertainment, and a Cash Bar. Tickets are £45:00 per person, and are available by e-mail from Dave Foot (email@example.com). All proceeds to Parkinson’s UK.
If anyone would like to book tickets, please email the address the on the flyer, and copy Ruth Brady in. (firstname.lastname@example.org) It would be great to see members of the Fareham group there. Valerie told me that some of these proceeds would be transferred to the south’s branches.
Very kind donation from ASDA:
The high spot of the L&P on Monday, 18th September, was a cheque presenta-tion of £500 from Asda Supermarket, Fareham. Asda Community Champion, Sharon Noble, and Asda customers nominated us as a worthy cause via their green discs. Our sincere thanks go to them. Below is a picture of Sharon passing a cheque to Valerie and Ann.
Our most recent collection (at Makro, Segensworth) on 16th & 17th September raised a useful £370-12p. and to Tesco on 8th October raised £218.37.Our thanks to all those who put themselves out to help with the collection.
CHRISTMAS CARDS: if you would like to purchase some Parkinson’s Christmas Cards, please look on our website www.parkinsons-fareham.org.uk for details, and how to order them.
‘ICE’ cards: We are looking at creating ‘In Case of Emergency’ (ICE) cards for members to carry with them. The idea is that if you become unwell or injured, this card will give important information about you and your health & medication to the police or medical personnel attending you.
The idea is to use a folded card that is normally kept inside its own plastic wallet. The front outside surface of the card will have your name, address, and telephone number, and the rear would have your ICE contact, such as a son or daughter, but not your spouse or ‘main’ contact as they could be already with you, and perhaps caught up in a common calamity. The inside surfaces would have any medical details you wanted to specify, such as Parkinson’s, dementia, anything you think somebody treating you could need to know, and any important medications and doses for these ailments.
The cards are primarily for when you attend Parkinson’s occasions, but would also be worth-while keeping with you at all times, just in case. PLEASE LET US KNOW WHAT YOU THINK OF THIS IDEA
Some Statistics for you (as of September 2017)
|PUK potential members||51||No PUK Number yet|
|Other “members”||62||Carers, Volunteers, etc.|
During the last few months, we have welcomed as new members:
Ian and Pat Absolom
Margaret and Matthew Blair
Pat and Roy Crooks
Ben and Jean Gosling
Welcome, one and all!
We have said ‘Goodbye’ to those who have left our group:
And, sadly, we have also had to say ‘Farewell’ to those who have passed on: Bob Calvert
Our thoughts go out to their family and their friends.
DON’T FORGET that you are welcome to receive a Reiki treatment – free of charge – from Dawn and/or Ted, both of whom are qualified practitioners, so do give it a try. Please speak with Peggy to book a treatment.
Christmas Party note from Carol:
The evening party is being reinstated, and will be held on Friday, 8th December, as usual at St Faith’s Church. Doors will open at 6:00pm, for sitting at 6:30. Homeward-bound coaches are due to depart at 9:30.
Because of the financial situation of the Branch, it is not sensible to subsidise this event to the same level as in past years, but a full hot meal served at your table, with entertainment, and a very happy evening for £15 a head remains excellent value. Tickets will be available for sale from 2nd October, so, as the saying goes, book early to avoid disappointment! Please contact Carol Howell to get your form to make your meal choice, either directly at one of our meetings, or by e-mail (email@example.com). Full commitment will only come into force when payment is made and ticket received.
We have ‘handed out’ numerous tubes of Smarties at the T&C and L&P meetings,but have only had one filled with 20-pence pieces and returned to our Treasurer, who bought and donated them to help raise funds.
A security issue: (from David Lewry)
If it is some time since your signature was registered with your bank, and it has changed significantly since then, make arrangements to go to your bank and update your signature they keep on file. Remember that a signature is required to be legible as your name.
Incidentally, have you ever tried reading a lawyer’s signature?
Also, be careful if you are considering creating a power of attorney for somebody to operate your finances on your behalf. Too many people have come to financial grief taking this route. If you need this type of facility, consider having dual signatories, with both to sign.
DID YOU REALISE that it costs the Branch about £1.82 to produce and send out each copy of the newsletter.
If you can’t receive or print this, do you have a neighbour, or a family member who is able and willing to receive your copy by e-mail, and print it for you? If so, please inform Ann & Ron Yorke on 01329 286 441, or by e-mail to firstname.lastname@example.org